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1.
Clinics ; 64(9): 877-883, 2009. graf, tab
Article in English | LILACS | ID: lil-526327

ABSTRACT

OBJECTIVE: To evaluate, by means of the Inflammatory Bowel Disease Questionnaire (IBDQ), the quality of life of ulcerative colitis patients submitted to proctocolectomy with sphincter preservation using J-pouch reconstruction over ten years ago. METHODS: The study consisted of 36 patients interviewed using the Inflammatory Bowel Disease Questionnaire. The score scale, resulting from the addition of each answer, ranged from 32 to 224, where the highest score indicates the best quality of life. The chi square test was used to verify the existence of meaningful differences between the results of the questionnaire and age, and gender proportion. For each section, as well as for all of them combined, the Kruskal-Wallis test was used to verify if there were differences in the Inflammatory Bowel Disease Questionnaire scores among the groups in relation to the proportions. RESULTS: After applying the Inflammatory Bowel Disease Questionnaire, it was determined that quality of life was considered excellent for 9 (25 percent), good for 11 (30.6 percent), regular for 13 (36.1 percent), and bad for 3 (8.3 percent) patients. In our study, we determined that 85 percent of the patients were pleased with and thankful for the surgery that they underwent. CONCLUSION: We can conclude that the possibility of sphincter preservation should always be taken into account, since patients remain clinically stable and have a high quality of life even after long periods.


Subject(s)
Adult , Female , Humans , Male , Middle Aged , Colitis, Ulcerative/surgery , Proctocolectomy, Restorative , Quality of Life , Colitis, Ulcerative/psychology , Follow-Up Studies , Patient Satisfaction , Proctocolectomy, Restorative/psychology , Quality of Life/psychology , Surveys and Questionnaires , Treatment Outcome
2.
Säo Paulo; s.n; 1998. 220 p. ilus, tab.
Thesis in Portuguese | LILACS | ID: lil-233441

ABSTRACT

Identifica as estratégias que as pessoas ostomizadas usam para enfrentar as situaçöes diária de suas vidas. A presença da ostomia e da bolsa coletora no abdômen geram ansiedades e preocupaçöes, o que leva os ostomizados a procurarem maneiras de se adaptar a situaçäo. Foram selecionados 22 pessoas ostomizadas, 11 do sexo feminino e 11 do sexo masculino, com as quais, através de entrevistas semi-estruturadas, gravadas em fita magnética e após transcritas literalmente, foram obtidos os dados necessários à pesquisa. A idéia central deste estudo prende-se ao fato de que as pessoas ostomizadas utilizam estratégias que as possibilitam ajustar-se à nova situaçäo. A metodologia utilizada foi de cunho qualitativo, com o aprofundamento da análise da fala do sujeito, a qual permite compreender os significados atribuídos às vivências experimentadas e, com isso, a identificaçäo das estratégias. Os dados foram submetidos à análise, buscando-se as categorias principais e suas expressöes chaves. Como resultado, foram obtidos os discursos do sujeito coletivo que revelam as estratégias de enfrentamento utilizadas e a categoria de alteraçöes. As estratégias de enfrentamento ativo expressadas foram: negociaçäo, compensaçäo/comparaçöes positivas, autoconfiança/autodeterminaçäo, manter senso de normalizaçäo, realizar atividades da vida diária, e realizar cuidados que ofereçam segurança. As estratégias de enfrentamento passivo foram: resignaçäo, revolta, encobrimento e isolamento social. As categorias de alteraçöes identificadas foram: sentir-se diferente, imagem corporal afetada, alteraçöes da sexualidade e medo da morte


Subject(s)
Male , Female , Adult , Humans , Attitude to Health , Ostomy , Proctocolectomy, Restorative/psychology , Brazil , Interviews as Topic
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